GUWAHATI, April 9 – “Lack of awareness is one of the major causes of early deaths due to haemophilia , a genetic bleeding disorder, almost exclusively affecting the males.” Professor PK Gogoi, Head of the Department, Hematology, Gauhati Medical College and Hospital while addressing a press meet on haemophilia , stressed on the need of mass awareness to increase the life span of the persons with haemophilia, so that they can lead a normal life.
The Guwahati Chapter of Haemophilia Society is organizing an open clinic for haemophiliacs on April 11 from 11 am at the Gauhati Lion’s Eye Hospital at Chatribari, Guwahati to observe the World Haemophilia Day.
The press meet was organized by the society to create awareness about the camp and disease as well.
“At present, 300 persons suffering from this disorder are registered with us. We also appeal to all those people, who complain about excessive bleeding and non-clotting of blood to attend the camp that would be inaugurated by State Health Minister Himanta Biswa Sarma,” said Mukesh Garodia, secretary of the society.
“In Assam almost 3,000 persons are feared affected with this disorder,” he mentioned.
The haemophilia is a life long genetic bleeding disorder in which patients bleed excessively. Persons suffering from it have prolonged bleeding either internally or externally,” he mentioned.
The most common parts of the body affected by bleeding are joints and muscles. Whereas males are the sufferers of the disease, females are the careers who can pass on the haemophilia to the next generation.
“Prolonged bleeding in joints and muscles, if not properly treated can permanently damage them leading to disability. Because the treatment of haemophilia is very expensive, the patients are either under-treated or are not treated at all,” said Dr Jeena Bhattacharya, Associate Professor at the GMCH.
“The disease can also be prevented if diagnosed during the anti-natal stage,” she added.
Due to high cost of the anti-hemophilic factor treatment, most of the patients in India depend on infusion of unsafe blood and wet blood products such as fresh frozen plasma (FFP) or Cryoprecipitate that can lead to blood-borne infections such as HIV/AIDS and Hepatitis B and C.